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One of the primary goal of our Association is to obtain the diffusion of the disease in different mass media, this is for a better arriving at the population, and they take knowledge of the sintomatologie amd cpmsodere ot. This is to avoid delays in the diagnosis and treatment.
In the short time we constituted as an Association, we have obtained some important collaborators to emphasize, and we want they have their own place in our web page, besides to have them deeply in our hearts, because thanks to them we have been able to continue growing and they allowed to help us a lot of people.
We have taken contact with many mass media, and this is not easy to get a space withe a "non commercial"note, they have made promise to us and we are still waiting, thats the reason why every little goal we celebrate with pride and biggest joy.
Thank you very much to all those that gave their heart us!
Another one of the objectives of our Association is to collect money to collaborate with doctors who investigate this disease, also to offer economic aid in some cases in that an expensive treatment is necessary and of resolving some trip of the doctors to the International Congresses. Nowadays it is an arduous task and we are always trying to obtain spectacles that can collaborate with us.
Printing House Red Pure and to Mr.Jorge Alberto Menis for the donation of christmas card and a special affection for Roxana De Estefano for collaborate in this arduous task she always has a little time for sharing with us regard.
Asociation Yabrudense that years to make our available in disinterested form its halls for the accomplishment of our events.
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