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Welcome to the new web page of the Argentine Association of Histiocytosis. This new stage represents a challenge, since the creation of the AAH, we have assumed the commitment to help patients, doctors and associations from other countries and, starting today, we are committed to strengthening that link that we have generated, to create new ones and strengthen those already generated through Forums, Workshops, Access to files and documents, creation of profiles and creation of the first community of Histiocitosis patients.
It is through this Intention that WE INVITE EVERYONE to register, each one in their SECTION following the corresponding LINKS: PATIENTS, DOCTORS, ASSOCIATIONS, COLLABORATORS.
WELCOME and THANK YOU, TOGETHER in the FIGHT to FIND a CURE.
Argentine Association of Histiocytosis
Welcome
Welcome to the website of the AAH – Argentine Association of Histiocytosis.
Histiocytosis is one of the diseases considered rare (EPOF).
From the AAH we assume the commitment to help Child and Adult Patients, who, like us, suffer from this disease.
More than twenty years ago, parents of patients with histiocytosis, adult patients with histocytiosis and its founder, the accountant Ana Maria Rodriguez (RIP), decided that in order to help new patients we should prepare ourselves to transmit our experience and share everything we had learned. knowing that this would not cure the disease, but that the new families would have a place to obtain the much-awaited information and would meet people who were on the same road.
In 2000, the Association was created with the hope of being a meeting point for all patients and their families and a joint work space where patients, family members, health professionals and World Associations seek alternatives to improve quality of life of the patients.
There are many pending subjects, among them the creation of Reference Attention Centers, Forums, Containment Workshops, Orientative Talks, but we know that together we can achieve it.
About us
The Argentine Histiocytosis Association arises from the need for a group of parents of children with histiocytosis and adults who also suffer from this disease to unite to stay informed and to collaborate with doctors and new patients.
Constituted as an Association in December 2000, we saw our dreams come true and our mission began.
My dear Any
It has been a week since you left, and we're all thinking about how not to miss you, its impossible, every time an issue to deal with arises, a problem to face, a patient to talk to, its recurring “any would have said, any would have done, any, ……” Its been so long since we talked for the first time that I don't even remember when it was, but no less than 12 years, like all desperate parents, you knew how to give us support and peace of mind to face the road to follow. Today we are not alone. Those of us who remain have a responsibility...
About us
The Argentine Histiocytosis Association arises from the need for a group of parents of children with histiocytosis and adults who also suffer from this disease to unite to stay informed and to collaborate with doctors and new patients.
Constituted as an Association in December 2000, we saw our dreams come true and our mission began.
Vision
The low incidence of this disease and the lack of information about it lead patients to go through complex situations such as late diagnosis, a shortage of health professionals who know about the disease, difficulty accessing treatments and in many cases lack of inclusion.
This pathology, like most EPOFs (rare diseases), does not only affect the patient but also the entire family environment.
It was necessary to create a meeting point where families shared experiences and found the necessary information.
Mission
Create a place where patients find not only the necessary information to fight the disease but also a meeting point for families who have gone through the same experiences.
Form a joint work space where patients, family members and health professionals develop alternatives to improve the quality of life of patients.
OBJECTIVES
Disseminate the existence of histiocytosis so that it is known by the community in general and by professionals dedicated to health and education.
Promote early diagnosis and appropriate treatments.
Facilitate contacts between the different families living with the disease.
Facilitate contacts between patients and health professionals.
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Board of Directors
2020 - 2022
German Guglielmo
Marketing
Paciente con Histiocitosis
Concepcion Amato
Vocal Suplente
Familiar de Paciente con Histiocitosis
Nicolas Ezequiel Topa
Prosecretario
Paciente de Histiocitosis
Mumi Lopez Cano Codolosa
Comunicación AAH y Desarrollo Web
Mama de Sofia (9 años) - Paciente Histiocitosis
Gustavo Patricio Leiva
Vocal Titular
Familiar de Paciente con Histiocitosis
Maria Alejandra Cengia
Secretaria
Madre de Nicolás - Paciente de Histiocitosis
Daniel Fernández
Community Manager
Papa de Franco (10 años) - Paciente con Histiocitosis
Luciano Federico Topa
Protesorero
Familiar de Paciente con Histiocitosis
Lic. Marina Marta Levit
Vicepresidente
Paciente de Histiocitosis
Marta Aliendre
Revisora de Cuentas
Familiar de Paciente con Histiocitosis
Mariana Rosario Haiek
Presidente
Paciente Histiocitosis
Fabio Leonardo Topa
Tesorero
Papá de Nicolas - Paciente de Histiocitosis
Our gratitude to these Companies and Institutions that collaborate with our Organization and facilitate our mission.
Want to Donate?
If you want and can help us, we pass you the details of our bank account:
SANTANDER RIO BANK
Current account 176-00529/5
CBU: 0720176520000000529954
